Sue Katz: Consenting Adult

How Shingrix supports National Napping Day

I had the old shingles shot (Zostavax) a decade or so ago. But for the last couple of years I’ve been urged to get the new shot, Shingrix. I would’ve done so immediately, but it is never available. Plus, it is hideously expensive, even on Medicare. It seems that insufficient amounts of this vaccine are produced in fits and starts and if you don’t happen to be aware that it is available, you have to hope that the next round might include you.

I had the first of two Shingrix shots, at last, on Tuesday. I thought my Dr’s office was going to administer it, but I got a call from my Rx insurance saying I had to have it at Walgreens, and yes, they cover it. It took my pharmacist two days to carve out time to vaccinate me and it cost me $185. I think my insurance kicked in a dozen dollars.

I was warned about the side effects: sore arm at the shot site (that more or less faded after 5 days); a rash (yeah, I got a small rash a few days ago which has faded away); and exhaustion.

Which brings me to today: National Napping Day. Since receiving the shot, I have found that my regular dozy afternoon slump has turned into a three-hour nap-of-the-dead. About 2:30 or 3:00 I crawl to my bedroom, fall onto the bed in all my clothes, and three hours later I come awake after a blacked-out sojourn in Never-Never-Land. This is happening day after day after day. Yesterday I was out of the house at an event so I didn’t get my nap and, damn it, I was wiped.

Why is this shot so important? Because shingles (a kind of reactivation, usually in elders, of chickenpox) SUCKS! I was traveling with my cousin when she got shingles around her torso, a thick band of weeping raw sores that were viciously painful and persistent. I will never forget how she heroically endured this gruesome condition.

So I’m not complaining about the naps which have become part of my day. In fact, I’m proud to fit in with the other celebrants of National Napping Day. I would continue with this post, but I feel a duvet calling my name.

PS: Here’s some additional info about the reason we’re being encouraged to take the new shot.

In the U.S., Zostavax and Shingrix are FDA-approved vaccines to help prevent the occurrence of shingles. In studies, compared with placebo, Shingrix significantly reduced the risk of developing shingles by 90 to 97% in subjects 50 years and older. Merck’s Zostavax, compared to placebo, significantly reduced the risk of developing zoster by 69.8% in those 50 to 59 years old, and by 51% in subjects 60 and older overall. However, in patients 80 years and older, Zostavax was only 18% effective while Shingrix was 89.1% effective in preventing shingles in this older, at-risk, age group. There are no head-to-head studies.

Tears at the Dumpster

All my adult life I have feared that in my old age, when I couldn’t work, that I would be a "bag lady". I knew I would never have a husband or children to support me: that I was and would be on my own. Recently, I see the women with shopping carts piled with bottles and cans, and recall all my fears. However, I now realize that, in fact, I’m okay in my retirement. That I will be okay. It is hard to adjust to this idea: that I will be able to afford my rent for the next 15 years (or so?) that I have left.

I collect all my bottles and cans and keep them in bags in the back seat of my car. The other day I am coming out of my building’s garage and a slender figure is on tippy-toes using a tree branch to try – I suspect – to fish out cans from our dumpster.

I pull over at the end of the driveway and call to the person: “Are you looking for cans?” No reaction. After a couple of more tries I realize that they can’t hear me or perhaps understand me. So I jog to the dumpster and step into sight-line and see that yes, she is fishing for cans. She is wizened and dressed in piles of clothing and looks frozen. She is so emaciated that I cannot even guess at her age or race.

I run back and forth to my car four times. First, I get out a big plastic bag of bottles and cans; then I return for a paper bag full of cans that I had forgotten about. It isn’t enough. I run back to the car and get out some money and race back to give it to her. And then finally, I realize that she is wearing a kind of plastic fake-leather jacket and must be freezing, so I return to the car to get the lovely purple fleece that my friend Jaya bought for my birthday and which I keep in the car for the frequent times I’ve misjudged the weather, and I give it to her. She says, “Too much, too much.” She leaves the driveway and I get into my car. As I pull out, I see her going to the back of the building across the way to where they keep their dumpster.

I have solved nothing for her. I have solved nothing for the many women, men, and children out on the streets. I am choked up – even now days later as I write this – because I am only too aware that the only solution to social problems like poverty and homelessness are social solutions. Laws that protect us; institutions that serve us; safety nets that catch us – and the present regime is busy undoing all the shards of support that remain. We are all in for heart-breaks – some so much more than others.

Just me and Billy Porter hangin’ out...

So here's the story: A generous talented friend took me to see the unmissable, funny, deep, brilliant play "The Purists" which was directed by Billy Porter, presented by Boston's Huntington Theatre Company (same building where my own play appeared this summer) -- and written by Dan McCabe.

She also got me into the after-party where Billy stood in one side room on seriously elevated platform shoes taking pictures. He was standing between two young blond women for some photos. The second they finished I asked him, "Do you take pictures with old dykes too?" He laughed, pulled me to him saying "Get over here, girl" and I snapped the moment.

(I was so star-struck that I forgot to mention Pittsburgh, our mutual hometown, and it never occurred to me that I shoulda brought A Raisin in My Cleavage to give to him.)

Is This Karma or Clutter?

After my mother – a mean-spirited woman – died, my friend went through the jewelry she had accumulated throughout her life. Much was tacky mid-century plastic and gaudy Florida flea market stuff, but my friend did identify a few items with a bit of value: a gold chain, gold bracelets, a necklace with a diamond, some diamond earrings.

It was 2009, deep in the Recession, and selling/buying gold was big business. I contacted a gold-buying guy who had a big ad in a brochure featuring varied
Cape Cod businesses. He turned up with a tray, a special light, and one of those lenses (known as a monocular loupe) that screws into one eye and apparently lets jewelry experts see deep into the item. I was one of a bunch of such buying stops he was making that evening. It was his profession over many decades, but business had really picked up because of the Recession, he said with glee. If I recall, he gave me $250 cash for the lot and left. Two days later he called to say that he had screwed up on the assessment of one of the pieces and wanted to return to my house to take back $100. I said no.

After his call, I realized that I did not recollect what I did with the cash. I scoured my apartment but never found it. This loss has stayed in the back of my brain. My mother had treated me like crap all my life. Luckily I’m not superstitious or spiritual – or I might think she was messing with me from her grave.

Fast forward over a decade and I’m in the midst of a de-cluttering blitz. Among some very dusty papers, I found that Cape Cod business brochure. Inside was $350 cash. So it was more than I remembered and it was right where I had laid it over 10 years earlier. Now I have enough money to pay the woman I’ve hired to help me organize this attempt to tame the chaos of my tiny crowded apartment.

Sharing My Dad’s Feet

I had a sweet dad and a dreadful mother. Saul didn’t protect me from her, but he stood up for me in other ways. He drove me to my black boyfriend’s house and then drove us around when Pittsburgh was too segregated for us, at 15 or so, to be open about being together, and he let us kiss in the backseat. Unlike my mother, he accepted my girl lover the next year and my lesbianism the rest of his life. In fact, we used to armchair cruise the passing women when we were hanging out together somewhere public. He was a brilliant dancer and in later years we used to lead the women at the elders’ tea dances side by side.

I used to look just like my dad – I have his beautiful eyes – and I loved that. But as I age, I look more and more like my nasty mother and that freaks me out. I see my hands and arms turning into hers – despite how much I loved my dad’s muscular forearms and veined hands.

For the last year I have been having terrible trouble with my feet and ankles. The result is that I can walk less and less and in fact at this point even a block or two does me in. I can’t stand in one place for more than a couple of minutes, which generally prevents me from attending dance lessons. I’ve seen six medical people, received six diagnoses, and been subjected to six failed treatments. Only one of these people has ever followed up to see how I’m doing after their failures. Combine that with a knee they say needs replacing, but which I can’t replace until a solution to my feet problem works, and you can understand why I am now the owner of two canes and one disability parking placard for my car. I am learning how to stay in the game of my beloved West Coast Swing, by perfecting a way to lead without really dancing, without really moving.

My dad died in 2004 and my mother three years later. I had three days in Pittsburgh to clear out their apartment and I took big garbage bags and emptied their file cabinets into the bags and threw them out. I had a charity come get all the other stuff. I made up two boxes of papers I noticed while dumping the rest that I thought I’d want and I sent those boxes home to Boston, where they have remained unopened.

This week I opened one of the boxes. First, I found a folder of interesting papers from my dad’s service during WWII. Underneath that was a manila envelope full of funeral stuff and obits. And then an astonishing two-page official-looking letter from 1996 turned up. It was from a vascular specialist physician to another physician, apparently my dad’s primary care person. It is titled “Saul Katz” and it describes him as a 78-year-old dancer with mysterious feet and ankle problems (the doctor calls them “interesting symptoms”) that the original doctor couldn’t figure out. The Dr. describes Saul as “overweight, awake, alert, and oriented” – which fits me too.

The vascular specialist did a complicated work-up on my dad but could not figure out the problem. He observes that the pain comes from walking or standing but that Saul, like me, is pretty much without pain while sitting. He writes: “I don’t have a perfect handle on this,” and goes on to make multiple speculations. In the end he says, “I’m sorry that I can’t give a definitive answer.” Nor have any of the six medical people I’ve seen. What a disappointment that medicine does not seem to have progressed around feet since the 90s.

I always thought that my love of dance was a reflection of my dad’s influence – and my commitment to leading exclusively as well. I am freaked that I have inherited this mystery disability as part of the genetic package. I am my father in so many ways, but at least I haven’t gone bald. Yet.

I write this at night, just as Father’s Day is ending.